Monday, April 4, 2011

Slow and Steady...

Hello everyone. I'm so happy so many people are checking in and praying for Baby Isaiah. I talked to Angel this morning and he is still amazing his doctors. They seem very optimistic. The plan if everything goes well is to do his hernia repair surgery on Friday or Monday. The key is everything going well... The nurses say they are getting good breath sounds from his lungs on both sides. If you are not familiar with left CDH, usually the right lung is the best and biggest and the left lung is very small or hardly visible at all. So hearing sounds on the left side is wonderful. We must all hold on to the positives. CDH babies look totally normal from the outsides but if you look at the insides they are really not right at all. Right now the doctors know that his bowels are up in his chest and his stomach is over by his heart. The goal as I said before is for Isaiah to remain stable and then do his surgery to move things back down where they belong. The fact that his liver is down below the diaphragm (because he does have some diaphragm) is very good. However cdh does not discriminate. It sometimes takes the babies that have very little defect. So the unknown to this condition is very scary. That is why it is so important for the doctors and nurses to be on top if not ahead of his care at all times.

Angel has been pumping so that when Isaiah can eat that he has her colostrum first and then her breast milk. It is so much harder when the baby does not nurse directly from you. The mechanical pumps are just nothing like a baby. Plus the feelings you have right now, like stress and worry do not help the flow. She just needs to keep at it and it will come.

Angel was quite happy that they allowed her to take his temperature this morning. They also covered his eyes and ears as a precauction as I explained before they become stressed by noise and light. As a Mother of a nicu baby you really feel helpless. It is so unnatural to not be in control of everything that has to do with your baby. One of the hardest things for me was the reality that I couldn't hold my baby. So tough. Please pray for Angel this is a very difficult thing to go through.

She is going to try to send me a picture on her phone again. I will post it as soon as I get it. I wished I lived closer. I'd be there everyday. He needs so much support and love right now.

Angel is trying to get a room at the Rossi House in the hospital. This is a special place for parents of kids in the hospital. She is also checking into the Ronald McDonald House. If you are not familiar with this, it is a large house with many usaually 15 or more rooms for parents of kids also in the hospital or receiving care. They provide a room and food at very little to no cost. If you go to McDonald's and see the donation box please throw your change in. It is a VERY wonderful cause. We stayed for 4 months at the New Jersey Ronald McDonald House and it was truly one of the reasons we were able to go to the hospital we really wanted to take our daughter.

God will carry them both through I have no doubt. Angel wants me to thank you all for your love and support.

~Terri

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